questions questions to ask plastic surgeon for breast reconstruction

Are you interested in reconstructing your breasts with your tissue using the blood vessels and tissue from your abdomen? A DIEP Flap might be an option for you if you haven’t had a prior tummy tuck. DIEP (Deep Inferior Epigastric Perforator) is considered the gold standard of reconstruction and is the first preferred donor site. If you had a prior tummy tuck or are very thin, it’s worth looking into secondary flap options that don’t take muscle such as SGAP, TDAP, PAP Flaps as well as stacked flaps, Body Lift flap, and hybrid flaps (implant plus flap).

Questions I Wished I asked in my First Plastic Consult for DIEP Flap Breast Reconstruction

I first consulted with a local plastic surgeon in Oregon for a DIEP flap, then got many more opinions remotely. I learned so much in the process and compiled this list to help you ask questions when interviewing your team along with answers I received at my first plastic reconstruction appointment versus my final experience. Remember that you are your best advocate and it’s 100% worth getting multiple opinions and comparing.

*Pro tip, ask these questions to multiple plastic surgeons in remote consults and compare answers to make an informed decision about your team. Consider storing the answers of each plastic surgeon in a spreadsheet to compare when choosing your team. Consider setting up multiple remote consults at the same time so you can compare answers from multiple facilities and surgeons around the same time to make an informed decision.

  1. How many DIEP Flaps do you do per week/month? My local surgeon performed one DIEP flap per month, but I ended up flying to the Center for Restorative Breast Surgery in New Orleans from Oregon where my surgeon (Dr. Cabiling) did 4 per week.
  2. What is your success rate? My local surgeon wouldn’t quote me his success rate, only the national average. Ideally, you are looking for a 99% success rate for your flap to take. Note you do have options if your DIEP flap fails.
  3. How long (on average) is surgery? I was originally quoted 14-15 hours for a double mastectomy with an immediate DIEP flap (DIEP done at the same time as mastectomy) locally. Where I ended up going, my double mastectomy and DIEP flap was 6.5 hours.
  4. Do you work with a co-surgeon that is also a microsurgeon? I had multiple people in the operating room which included an oncologic breast surgeon who performed the mastectomy, a plastic surgeon (who was a microsurgeon), a co-surgeon (also a microsurgeon who assisted), and a PA.
  5. What is my risk of bulge? My local surgeon quoted me over a 20% chance risk of a permanent bulge. Where I had surgery, my risk was quoted under 1%.
  6. Do you typically use mesh or would you take muscle due to anatomy of my blood vessels? If a surgeon says yes to this, please get another opinion. Many times mesh is used to help prevent hernia when muscle is taken. Many DIEP flap surgeons are taking some muscle to harvest the blood vessels. Sometimes there is a time and place for mesh such as if a patient has a prior fascia injury and needs to strengthen the abdominal wall, that said, if a surgeon is regularly using mesh in their DIEP flaps, know there are other options that don’t include mesh. If a surgeon says that there are times they would take muscle due to your blood vessel anatomy, then know there are other options such as Apex and SIEA, see next question.
  7. Are you skilled in the APEX flap technique or SIEA if needed? APEX is a highly specialized skillset that was born at the Center for Restorative Breast Surgery in New Orleans. There are surgeons who are skilled in this across the US, but they are few and far between.
    • I had multiple non-linear perforators (shown in a CTA scan that my local plastic surgeon ordered) and every every surgeon I spoke to wanted to take some muscle, convert to MS-Tram (all tram flaps take muscle), and use mesh. Apex flap is a highly specialized technique where if a patient has multiple non-linear perforators and adequate blood flow, the surgeon will cut the blood vessel behind the muscle, bring it around the muscle, reattach it, and then transfer it to the breast, leaving the abdominal rectus muscle in-tact.
    • Sometimes Apex can’t be performed due to inadequate blood supply. SIEA (Superficial Inferior Epigastric Artery) is an alternative way to harvest the blood vessels without compromising the muscle.
  8. Would a CTA Scan determine my eligibility for a DIEP? If a surgeon says your CTA scan would determine your eligibility, please get another opinion. Ideally, you are looking for a surgeon who uses your CTA scan as a roadmap to help guide the decision-making process. Below is the Center for Restorative Surgery’s Apex Algorithm (shown on page 3 of the journal article).
apex flap blood vessels for diep flap from center for restorative breast surgery
  1. Do I have the option for immediate reconstruction? If you don’t have the option to do a mastectomy and DIEP flap at the same time due to surgeon availability, then please get another opinion. Note the Center for Restorative Breast Surgery does free remote consults.
  2. Do I have enough tissue for DIEP? If your surgeon tells you to go home and gain weight for DIEP, please get another opinion. My local surgeon grabbed the fat on my belly and told me I had enough for an A-cup and to go home and drink milkshakes. When I did my initial consult with Dr. Cabiling, he asked if I was told I didn’t have enough tissue for DIEP and mentioned almost, that my local surgeon told me I’d have enough or an A-cup. After my final surgery with Dr. Cabiling, I ended up at a DD. If you have an athletic build, it’s worth looking into other options such as SGAP, Body Lift, Extended DIEP, or even a stacked flap (for example DIEP plus TDAP).
  3. Do I need to lose weight for DIEP? If a surgeon explains that you need to lose weight for DIEP, it’s still worth getting another opinion. I know multiple women with high BMI who travel for DIEP who did not have to lose weight to get their surgery.
  4. Is there an option to fix Diastasis Rectus (if relevant) in Phase 1 or Phase 2? Diastasis rectus can happen after pregnancy, when your abdominal muscles split. This happened to me and my surgeon fixed my Diastasis Rectus during my DIEP and double mastectomy. Not all surgeons offer this.
  5. What is the backup plan if my flap fails? While DIEP flap failures aren’t common they can happen. If your surgeon only offers an implant as the backup plan, know there are many alternative donor sites available but your surgeon may not be skilled in them.
  6. Ask options for Nipple Sparing Mastectomy (NSM), Areola Sparing Mastectomy, and Nipple Reconstruction. Note that if you have an areola sparing mastectomy (keep the areola but remove the nipple) that it may limit your nipple tatooing options.
  7. Show me before and after photos of your DIEP flaps (immediate vs delayed, whatever is relevant to your case).
  8. Is lowering the scar an option in phase 2? Mine was lowered in phase 2 and my incision is easily covered in a bikini.
  9. What does Phase 2 entail? When Does Phase 2 typically happen? You may be wondering what is phase 2. Typically the first surgery is about removing the breast tissue (in immediate reconstruction) and harvesting the blood vessels and tissue for the flap to take.
    • There is typically a second surgery (aka phase 2) – (mine was three months after my initial DIEP) to address any concerns and help even them out with lipo/fat grafting. My Phase 2 consisted of extending my incision behind me for better contouring, removing dog ears, and moving fat from love handles and upper flanks to my chest. Everyone’s phase 2 is different and unique to each person.
  10. When would my DIEP flap take place? If you are quoted a long waiting period, then please get another opinion (get multiple opinions regardless). Note if you have active cancer there are places that save dates for active cancer that will allow for immediate reconstruction.
  11. How many nights would I stay in the hospital? I was originally quoted 3-4 days in the ICU plus another few days in the hospital. I ended up staying 2 nights in the hospital in a private room with ICU-type care (my flaps were monitored with dopplers and nurses checked my flaps every hour for the first 24 hours).
  12. What should I expect for recovery? My local surgeon told me I would feel like I was hit by a bus for 2 months and would be hunched over on a walker for two months. I was able to stand up straight after about a week and never used a walker. Most of my restrictions were lifted at 4 weeks, with the rest of my restrictions lifted at 6 weeks.
  13. What items do I need to purchase for recovery? Ask if you would need to purchase a binder, surgical bras, etc for recovery. I put together a list of what to bring to the hospital for DIEP and other helpful items for home.
  14. How long do I need to stay in town (if traveling for surgery)? I flew into New Orleans a few days before surgery, preop was a day before surgery, 2 nights in the hospital and I flew home a week after surgery.
  15. Are there discounted or free lodging options if traveling for surgery? I stayed at the Hope Lodge for free (funded by the American Cancer Society). A full list of Hope Lodges around the country are the USA is listed here.

Additional Note: Look at your plastic surgeon’s website. If they are offering an array of cosmetic procedures, good chance they aren’t doing DIEP every day.

Surgical Groups to Look Into for DIEP that Offer Remote Consults

Sources:

  1. Myth-Busting the DIEP Flap and an Introduction to the Abdominal Perforator Exchange (APEX) Breast Reconstruction Technique: A Single-Surgeon Retrospective Review
    Read the full article here
  2. DIEP Flap Reconstruction
    BreastCancer.org – DIEP Flap Overview
  3. Stacked Flap Reconstruction
    BreastCancer.org – Stacked DIEP Overview
  4. Autologous breast reconstruction beyond the DIEP: a narrative review of autologous breast reconstruction options beyond the DIEP flap
    Review Article

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